Piper has an interventionist that meets with us once a week to help us try things to promote her motor, social and cognitive development. We spend hours working on helping her do things that most babies do naturally, for example we are working on getting her to bat a toy. She did this all the time before her seizures started but hasn't shown much interest in her surroundings until recently. She is starting to notice toys around her which is a good sign. We are also working on teaching her to hold her bottle, hold toys, play with her hands and feet, and reach out for people or objects.
She also has a physical therapist that sees her once a week. She has taught me exercises to do with her to strengthen her neck, arms and trunk. She is actually pulling her body up to sit but her head still wobbles. Her head control is much better and when she is alert she does a really good job. She is getting stronger so the exercises are working. Now that she is getting so big (she is 18lbs 10oz and 28.5 in!!!) I am not physically able to support her body in sitting position and support her head too. We are looking at some adaptive chairs to help her sit and be engaged as well.
All of the information from both of these people is great but finding time to do it all is a challenge. I have to decide what exercise or strategy is most important and what she will benefit the most from at a certain time. I race the clock and most days we barely have enough time. My OCD tendencies are back in full force, some days this is a blessing, others not so much! And just ask Justin, telling me to take a break or not to worry will only get a "not so nice" response from me. With Piper, her routine is crucial and we can tell a difference on the days that are off schedule. (yes, I'm that crazy mom)
Piper will have an evaluation for adaptive technology as well. Our TI feels that Piper is motivated by bright colorful toys that make noise. She does not respond to stuffed animals that are not bright colors. We realized that we have a ton of stuffed animals and not very many bright toys that make noise. They will be making toys for her that are more sensitive to touch so that she can make the connection when she is playing.
Overall, she is doing really well and is making progress. We pray it continues. Piper and I both have a cold which made me very nervous because this is her first "normal" sickness!! I have no idea what to do!! Lol. I was primarily worried about an increase in seizures (which is typical) but she seems to be okay so far. Hopefully she has her daddy's immune system and will get over it quickly.
As far as everything else goes, we are showing the house to rent or sell, whatever comes first. We are going through a broker so background checks,etc will be done on possible renters. We actually have two showings tomorrow. You have no idea how hard it is to keep a house clean to show with a baby, two dogs and a cat!!! It's a never ending job :) One of us has the bright idea of having a yard sale this weekend too.....sure why not? It's not like we are busy or anything.
It's a good thing Justin and I both don't know how to sit still for long and thrive when we have a million things going on.
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