Baby Steps

Thursday, March 1, 2012

Big announcement!

No, I'm not pregnant again..haha!

Justin got a promotion!!!! We are very excited for him and his new responsibilities and opportunities with his job. He will be traveling more so we feel it would make sense for us to......I never thought I would say this.....move back to Knoxville! He was gone for a long trip and realized it added a lot of stress worrying about what I would do if there was an emergency. It just makes sense for us to be close to family. We will miss our friends that we have made here very much. Our church family has been such a huge support system and we are so thankful God put us here and provided us with an amazing church.

We are putting the house on the market in the next month so we are busy doing home improvement projects. Since we are not sure what the future holds for Piper we are considering building a house in Knoxville that is wheelchair accessible. We will know more as she gets older and we can see if she has the potential to walk. It's just a thought right now. We will have to save up some money before we are able to do this. The good thing is we are on no schedule at all so we will just see what happens with this house first.

As far as doctors go, we don't have a problem switching. So all you Knoxville people...I will need recommendations on a pediatrician, pediatric neurologist, Opthamologist, Pt/Ot etc. Since we are only going to Emory once a month we feel it won't be a big deal to drive another hour.

Piper is doing a lot better on her new medicine. Her spasms have decreased, she still having episodes but they are not as intense. She is still very sleepy during the day but she is more active than before when she is awake. We are working on helping her get stronger, she is still having trouble holding her head up. Her torso is very strong and she kicks her legs all the time so that is great. She is "talking" more and looking around. She is still not smiling which is disappointing because we thought once the seizures decreased her smile would come back. Overall, we have seen huge improvements and are so thankful. The prayers are working!


  1. So excited for all of her improvements!!!! Our god is an AWESOME God!!!!! Praying for you guys always!


  2. Hi Annie. My name is Lindsey and I uses to go to hitch with Justin back in the day haha. I somehow ran across his page on fb tonight and started reading your blog and have totally been captivated by your sweet story. I am a pediatric nurse at east tn children's hospital and would love to answer any questions that you have regarding doctors. I also have a friend with a daughter who had special needs that may be able to help you even more of you need some direction towards specialists and therapies. Let me know if I can point you in any direction! Praying for you guys and your sweet piper. The Lord is certainly using you guys and piper to further his kingdom.

    1. Thanks Lindsey! We are lookin for a pediatrician, ped Opthamologist, and physical therapist. I will probably call around to see if any have worked with another girl with Aicardi. If you have any suggestions let me know. Thanks!!