tag:blogger.com,1999:blog-7213394306620338343.post8923918220279712364..comments2023-11-05T01:37:57.606-08:00Comments on Baby Steps: EEG and another new seizureThe Koozershttp://www.blogger.com/profile/04256209375225522353noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7213394306620338343.post-56616303840831617062012-07-24T18:42:31.215-07:002012-07-24T18:42:31.215-07:00Hi!I read a few of your posts and our story seems ...Hi!I read a few of your posts and our story seems somehow similar. My son was diagnosed with infantile spasms at 9 months. We started him on Vigabatrin on July 27 2010, and that day was the last day we ever saw the eyes rolling and arms jerking. I say that and Im so scared to jinx it. Does he have seizures now? No, will seizures ever come back? sure they will one day, but Im making the best of what I have. He is delayed. He is almost three and still non verbal, still gags on solids and still loses balance when walking. He also has a genetic disorder, NF1. But like you said we are learning to live a life we never expected. Love your upbeat attitude and positiveness.Neurotic Iraqi Momhttps://www.blogger.com/profile/16833927860195611182noreply@blogger.com